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Look at Lilli go! Living with Goltz syndrome, Lilli was recently featured on KYTX CBS19 for being named the 2026 Children’s Miracle Network Miracle Child in Tyler, Texas! Watch her inspiring story of growing up with Goltz syndrome, a rare form of ectodermal dysplasia. Lilli’s silly spirit, creativity, and unstoppable positivity shine through in everything she does 💛 What an incredible story and a beautiful representation of the ectodermal dysplasias community. A huge thank you to the Children's
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